First published 6/24/23 It's been a long time since I've written a blog post. I don't even know if blog posts are "in" anymore. Today, I found myself thinking about our time in our city and feeling grateful. I started to write in my journal but stopped. These things are too good. Our King is too good. These things need to be shared. I hope this is an encouragement. I hope it spurs you on. I hope it opens your eyes to the kindness and majesty of our King! He has done great thi

First published 2/13/17 One night last week, I had a moment where, for the first time in his 18 months of life, I thought, "I wish Henry didn't have to have Prader-Willi Syndrome." It was a guilty thought, and was accompanied by more than a few tears. I'm not sure if they were tired tears, third-trimester tears or actual sad tears, but they were there nonetheless. working so hard to crawl! Trust me, I have wondered what Henry's life would be like without his condition many t

First published 5/2/16 The month of May is Prader-Willi Syndrome awareness month! Didn't know that? Me neither, until this year! So many moms in this new-found community of mine have been posting their stories to encourage others and help the people around them understand a little bit more about this condition that affects our lives everyday. I figured now's a good a time as any to really hone in my blogging skills by posting a bit more regularly this month about our journey